It ‘s April! For all of us Autism parents that means its a month to help our special children celebrate themselves and raise awareness for Autism.
Here in our home Autism doesn’t come for one month out of every year. Autism is in our lives every moment of every day. I have two absoultly beautiful children. Autism effects us all but my youngest is the one who will have to figure out how to live in a world where everyone finds him to be “different”. As his parent it is my job and greatest privilage to help him navagigate the world in a way that makes sense to him.
I do not push him to make friends, keep quite, never stim, or toilet train on anyones terms but his own. I am here simply to help him. He’s a pretty smart kid, he gets everything in his own time.
We never thought he would speak. Give him a therapist he proved us wrong after six months. We never thought we’d see the day when he would be able to function without having two to eight meltdowns a day. An Occuptional Therapist helped show us how to calm him and what could trigger meltdowns. We were never sure if he could form an attachment to his dad it is so strong now I amost don’t remember a time when it wasn’t. Our son has proved to others as well as his parents that he is unstoppable. No matter what the challange he, with help, pushes through.
I am all for raising awareness. We have a bumper sticker, blue light, t-shirts and will answer any question you ask to the best of our ability. That being said Autism lives here daily and should be talked about daily. I will never stop trying to get people to understand. My son is a person like everyone else. He has thoughts, feelings, emotions. He can show great kindness and empathy. He has struggles
like everyone, good days and bad ones too. He laughs, cries, tickles, plays. He may not do so the same as a “typical” child would because he has to think twice as hard before he does something and he will often need someone to show him how. This does not make him less, just a little different!
While your lighting your bulbs and spreading awareness this month please think about all the children and adults you know who are not less, but a little different. In spreading awareness you are helping every person with Autism become a little bit more understood for that I Thank you!
I was reading an article today which I will post here that concludes a study done on patients with ADHD and Autism who have copy variants. This means a duplication or deletion of chromosomes. The study went on to say that some of these copy variants can be linked to patients with ADHD and Autism and that 75 percent of children with Autism also have ADHD.
Adrian falls within this 75 percent. His sister and my only other living child has half of this scenario the ADHD half. While I am unsure whether she carries the duplications her brother inherited from me. I am pretty sure she does. I have to take her to have the test done.
Both children also have an Auditory Processing Disorder. More sign of my bad genes at work. I have one of my three siblings who have also had genetic testing done and it turns out she has a completely different genetic condition than I do yet at least two of her five children also have ADHD. How odd is that?
She keeps telling me the genetic lab wants to study our family because two different copy variants in full blooded siblings is extremely rare. I am supposed to be going back to the lab in December so they can track Adrian. One of the duplications I passed on to him is known to cause Autism.
I knew it was genetic because he has been they way he is since birth. Jade has too but her impressive earliness to meet milestones and rapid language development hid that fact from me. She has always been a brilliant child when it comes to those things. Last year we had to hire a private tutor to work with her because she was behind in math. She also started soccer which she loved.
The Auditory Processing Disorder distorts the way my children hear and learn. You can not find this disorder by doing a simple hearing test. It took six hours of neuropsychological testing to come to that conclusion for each of my children.
This would explain why my children do not respond to mine or my husband voice the first time or subsequent times. Why I am told I yell way too often by my mother who means well but infuriates me whenever she mentions it. I must yell in order to get their attention often. I used to think they were both just being defiant and maybe that is a part of it. But for the most part it is the fact that the connectors in their brains misconnect signals to their ears both the left ear. I think I have this disorder too though I have not been diagnosed. This disorder manifests as an inability to hear and can cause the person to speak louder than normally.